I think it was a small train, the one that ran me over on the 24th.
I got very little sleep, nervous as heck, and as always stress makes me cook, cinnamon rolls, swedish tea rings, I post pictures later, but back to the day. I got up, showered, headed to the hospital. Remember this, if you are have a temporary ScS put in, shower. It won't happen again for a week.
It didn't hurt that much leaving the hospital, felt ok, a little sore, but nothing horrible, I was tired, then it happened. My honey went to work, and I had to go to the store. Off I went, happily shopping, seemed a bit off kilter, but nothing tooo bad right? Got home and fell asleep, i was done for the day.
Then I woke up and realized a small train had come running through my bedroom in the middle of the night and I could feel every inch of it. I was not a happy girl.
Today is the 5th day, I have a small fever, I think it has helped a little, as I have only taken 2 pain pills a day for my arm, but I really haven't been able to sleep for 5 days. I made Greg take the tape off as it hurt so bad, I was wishing to wake up dead. It left welts all over my back anywhere it touched.
I tried the ice-packs but it made my arm hurt, and then a heating pad, and now nothing. I think I had my heart set on waking up well, and it didn't happen.
The good news is my leg has not bothered me all week, so i was able to go for a walk with my dog. Then it snowed..
Will I opt for the full ScS? I don't know yet, let you know next week...
Wednesday, December 30, 2009
Monday, December 14, 2009
Pain Bills of Rights
1. We have the right to tell others that our nervous systems are dysfunctional, and that otherwise normal sensations are communicated to our brain as torturous pain.
2. We have the right to ask for assistance with feeding and housing ourselves, just as with anyone else who suffers a debilitating disability.
3. We have the right to inform our doctors that our pain is different from that of other patients, and to help educate them by providing literature specific to Central Pain so that they may better offer us treatment.
4. When a treatment is not working, we have the right to tell our doctors that it is not working without losing the good will of the medical profession.
5. We have the right to demand that the needed research is performed to help stop our pain.
6. We have the right to call for every medical student to receive at least basic training from specialists in the treatment of pain.
7. We have the right to wear less than the normal amount of clothing and still circulate in society, so long as we stay within bounds of decency.
8. We have the right to limit of movements, and to avoid movement that is painful.
9. We have the right to request help and understanding from others without being accused of weakness.
10. We have the right to help others understand that we are severely disabled, even though our bodies appear normal to their eyes, and thus we have the right to not always fulfill the expectations of others as to how we should act.
This was found at http://www.aboutrsd.com/
And The Pain Patient’s Bill of Rights - Chronic Pain - Health.com
2. We have the right to ask for assistance with feeding and housing ourselves, just as with anyone else who suffers a debilitating disability.
3. We have the right to inform our doctors that our pain is different from that of other patients, and to help educate them by providing literature specific to Central Pain so that they may better offer us treatment.
4. When a treatment is not working, we have the right to tell our doctors that it is not working without losing the good will of the medical profession.
5. We have the right to demand that the needed research is performed to help stop our pain.
6. We have the right to call for every medical student to receive at least basic training from specialists in the treatment of pain.
7. We have the right to wear less than the normal amount of clothing and still circulate in society, so long as we stay within bounds of decency.
8. We have the right to limit of movements, and to avoid movement that is painful.
9. We have the right to request help and understanding from others without being accused of weakness.
10. We have the right to help others understand that we are severely disabled, even though our bodies appear normal to their eyes, and thus we have the right to not always fulfill the expectations of others as to how we should act.
This was found at http://www.aboutrsd.com/
And The Pain Patient’s Bill of Rights - Chronic Pain - Health.com
- Act in a way that promotes dignity and self-respect.
- Be treated with respect.
- Make mistakes.
- Do less than you are humanly capable of doing.
- Change your mind.
- Ask for what you want.
- Take time to slow down and think before you act.
- Ask for information.
- Ask for help or assistance.
- Feel good about yourself.
- Disagree.
- Not have to explain everything you do and think.
- Say "no" and not feel guilty.
- Ask why.
- Be listened to and taken seriously when expressing your feeling.
I was at the Pain Clinic & the doctor was answering my questions. My doctor asked how it was that I was so interested in the surgery, and most people just wanted to come and pick up their medications and go home. I said I wanted to know how to fix the pain I was in and I wanted to go back to work, cleaning my house, and being a part of the family. I haven't skiied in 3 years, neither have my kids.
I WANT MY RIGHTS BACK!!- and thank you for telling me I had some.
Sunday, December 13, 2009
Where I started
3 Years ago, I was a svelte 150 lbs, sitting around in a skinny size 9/10. Now I admit this is not supermodel skinny, but it was great for me, I was 42, had a good job, worked out and was happy with my life.
Then life hit, My husband had a heart attack when a doctor's nurse brought him out of anathesia, from his surgery related to TMJ. I, of course, worked 60-80+ hours a week. I ended up with bilateral epicondilitis. I went to a physical therapist, and a doctor, and the insurance company changed my doctor and my therapists, the doctor changed my requirements to an occupational therapist, the clinic screwed up and sent me into a room with a therapist who taped a little electrode to my elbow. He said it would hurt a little, then it started to sting,then burn then really, really hurt, so I told him it hurt. He said it would hurt a little, but not to worry, it would stop. I said it really hurt. He told me to relax and it would stop hurting, turned out the light and walked out of the room. God did it hurt. I kept waiting, waiting, and then waiting and crying.
He came in 20 minutes later and my arm was on fire, with sharp pains running through it. And it got worse and worse, like someone had opened my veins and poured a lighter fluid into my veins, lit it and then started stabbing me over and over. By the time I got home, I couldn't stand the wind on my arm. The air in the sunny afternoon made my arm hurt worse. There were no answers, for months I laid in bed and waited, went to doctors, therapists, and took pills, this one and that one, a blend of this and a blend of that, and the pain went on and on. Finally someone told me what was causing the pain. I had steriods, a second opinion who made me cry, wrote all over my arm, then told me it was all in my head. I saw a doctor who stuck a needle in my neck in a what is called a stellate ganglion nerve block, and the pain in my arm was so bad I had one without any kind of anethesia. Anything to relieve the pain.
And in the mean time, the pounds stacked on, and stacked on. The steroids helped add a few more pounds. I stopped working out cause it hurt, I stopped walking my dog, and then i started staying in the house, cause it hurt to go outside, my weight hit 200, 210, and I got depressed, Now I am at 243 and I am miserable. Can't breathe, can't walk far, and I am so tired all the time, now pnemonia and it has hung on for months. So I begin - this is my journey.. My pain and my life, and as for answers Today nothing still... On the 24th I am having a temporary spinal cord stimulator inserted into my neck, in hopes the pain will stop. And even if it doesn't I am will be one heading into the skinny zone..
Then life hit, My husband had a heart attack when a doctor's nurse brought him out of anathesia, from his surgery related to TMJ. I, of course, worked 60-80+ hours a week. I ended up with bilateral epicondilitis. I went to a physical therapist, and a doctor, and the insurance company changed my doctor and my therapists, the doctor changed my requirements to an occupational therapist, the clinic screwed up and sent me into a room with a therapist who taped a little electrode to my elbow. He said it would hurt a little, then it started to sting,then burn then really, really hurt, so I told him it hurt. He said it would hurt a little, but not to worry, it would stop. I said it really hurt. He told me to relax and it would stop hurting, turned out the light and walked out of the room. God did it hurt. I kept waiting, waiting, and then waiting and crying.
He came in 20 minutes later and my arm was on fire, with sharp pains running through it. And it got worse and worse, like someone had opened my veins and poured a lighter fluid into my veins, lit it and then started stabbing me over and over. By the time I got home, I couldn't stand the wind on my arm. The air in the sunny afternoon made my arm hurt worse. There were no answers, for months I laid in bed and waited, went to doctors, therapists, and took pills, this one and that one, a blend of this and a blend of that, and the pain went on and on. Finally someone told me what was causing the pain. I had steriods, a second opinion who made me cry, wrote all over my arm, then told me it was all in my head. I saw a doctor who stuck a needle in my neck in a what is called a stellate ganglion nerve block, and the pain in my arm was so bad I had one without any kind of anethesia. Anything to relieve the pain.
And in the mean time, the pounds stacked on, and stacked on. The steroids helped add a few more pounds. I stopped working out cause it hurt, I stopped walking my dog, and then i started staying in the house, cause it hurt to go outside, my weight hit 200, 210, and I got depressed, Now I am at 243 and I am miserable. Can't breathe, can't walk far, and I am so tired all the time, now pnemonia and it has hung on for months. So I begin - this is my journey.. My pain and my life, and as for answers Today nothing still... On the 24th I am having a temporary spinal cord stimulator inserted into my neck, in hopes the pain will stop. And even if it doesn't I am will be one heading into the skinny zone..
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